When You Wish Life Were Just a Dream

June 19, 2010

It has been a long time since I last posted on this blog, but there’s a really good reason for that.  I started back to work and my husband and I separated.  Yeah, life has been really rough the last couple of months.  My husband moved out at the end of April and now has a townhouse in a neighboring city not too far from me.  Then on May 19 I started back at work!  Work has been nice.  I didn’t think I’d be happy going back, but I really do enjoy working.  It as made me realize that the job wasn’t sucking the life out of me, my depression was.  Now that my meds are under control the job is bearable and usually kind of fun and interesting.

My daughter was in the hospital again in May when her meds caused her to start wanting to hurt other people, and now she’s doing very well on her combination of medicines.  She made it through the end of ninth grade with 2 Bs, 2 Cs, and one F (in Phys Ed).  We’re going to contest that grade because she did online work that was supposed to bring it up, but apparently didn’t.

Now that school is out and my husband has a large enough place of his own, the kids are spending alternating weeks with us, beginning on Sunday nights after dinner.  This has been his first full week having them and it feels like an eternity.  I miss them so much!  They spend the days at my parents’ house, so I did go for lunch over there one day when I was working from home, and it was a little slice of heaven.  They are great kids.  Maybe this will help us truly appreciate each of them a little more.

I’m so looking forward to Sunday evening when they come back into my life, littering the house with toys and guitars, and filling it with friends, laughter, and music…oh, and those words, “What is there to eat?” 

The interesting part in all of this is that I don’t miss my husband that much, not yet anyway.  I miss having him mow the lawn and cook out on the grill, but I’ve learned to do the first on my own and will soon learn the grill as well.  But I don’t miss the arguing, the giving in all the time, and the little frustrations that peppered my life with him.  I’m enjoying rearranging the furniture, painting my office, and doing little things to make it feel more like my home.  It always seemed weird not to feel at home in my own home, you know?  And I’ve grown very close to my cat this week while the kids have been gone.  She’s a good companion, and I think she likes me, too. :)

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Categories: Fibromyalgia, Finding Balance, Kids, Work.

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Update on my Life

May 14, 2010

Wow, lots has happened since last month when I wrote.  My husband moved out, my extension from work went through until tomorrow, and I find out today if it gets extended again to June or July, and my daughter is back in the hospital.  Unfortunately she didn’t respond well to the Prozac so she was prescribed Paxil, which led her to hear a voice telling her to hurt other people (especially her little 5 year old brother).  I took her to therapy on Wednesday this week and after a few minutes the therapist called me in to have my daughter tell me what she’d been hearing and seeing in her mind.  The therapist recommended we go to the hospital for an assessment, which we did, and which led to her being admitted again.

At visiting time last night the psychiatrist pulled us into her office and gave us the rundown on what medications Deanna might try next.  We’re going to go with a combination of Wellbutrin and Abilify and see if that helps.  Until the voice stops being so insistent, they want to keep her at the hospital.  Otherwise, she may get to go there as a partial or outpatient person, showing up everyday during the week from 8-4 and on weekends 9-1.  She’d really prefer that, but we will do what the hospital recommends in any case.

Today I have a meeting with Deanna and a counselor for some family therapy.  Her homebound situation with school has been working out remarkably well and her grades have improved.  It really has been a joy to spend so much time with her, as I haven’t let her out of my sight for very long periods of time.  We even published her many poems in a book of poetry through Lulu.com! 

So, I’m adjusting to life as a single mother, although my husband calls me several times a day and insists on showing up whenever he likes.  We have family therapy twice a month with the same therapist Deanna sees weekly, and next week it will just be my husband and me so we can discuss such boundary issues.

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Categories: Children, Depression, Fibromyalgia, Kids.

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Home Schooling

April 13, 2010

My older daughter has been in the adolescent behavioral health program at a hospital for the last week after taking a bunch of pills some boy on the bus gave her.  She’s a 9th grader.  We’ve since learned that part of the reason she’s been getting D’s and F’s in her classes the past quarter is because she’s been skipping classes.  She said since she got her hair cut short people are calling her a dyke.  How can kids be so cruel?  She also mentioned that her parents may be getting a divorce.  Did she think this would help that situation?  People have told me that kids somehow unconsciously do drastic things to become a problem, so parents will have to come together to deal with it instead of worrying about their marriage.  Interesting.

The psychiatrist at the hospital agreed that home schooling for the last remaining weeks of the school year would be preferable.  I’m supposed to return to work on Monday!  I emailed my manager in desperation, asking her to please consider letting me return part time.  She responded that she’d have to think about how that might work, and said she’d get back to me in a couple of days.  I see my psychiatrist today and need to let her know whether I want to pursue long term disability or not.  I also asked my manager to let me work strange hours if part time was not an option (7am-12pm and 5-8pm), but I’m not at all sure I’d be able to keep that up along with home schooling, especially with all the sleep I’ve been requiring lately.  Maybe if I’m just so busy sleep won’t enter my mind…we could hope.

I’m very worried about my daughter.  She’s taking a small dose of prozac for now, and will begin therapy once weekly.  In addition to keeping her home I will have to figure out ways to keep her happy without letting her roam the neighborhood (the boy who gave her pills lives in our neighborhood).  My husband is already pursuing the boy by going through the school principal who will then get their security officer to follow up on it.  My neighbors have a farm with horses that they said my kids are more than welcome to visit.  Once we know where it is, they said we can even go there on our own whenever we’d like.  She can groom the horses, feed them, ride them, etc.  She loves being outdoors, so I think this could be a life saver for us.

The school will send a tutor once a week with all of her assignments for the week.  Hopefully we will be able to get her through the end of the year and help her get her grades back up.  The school has been very helpful.  My son was sick yesterday, throwing up all day, it just makes me wonder how on earth I’ll be able to handle such situations if I’m also trying to work, but we are reliant on my health insurance.  Please pray that either the part time or the long term disability comes through for me!

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Categories: Children, Depression, Fibromyalgia, Finding Balance, Kids, Work.

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All About Trying Something New

January 20, 2010

Today I dropped my daughter and son off at their schools and then went to the Healthy Home Market to get some organic produce, steel cut oats, and Agave sweetener.  I also picked up some raspberry incense, something I’ve never done before but it sounds like it might be nice.  I’m all about trying new things lately.

I bought myself flowers last week.  They had two dozen miniature yellow roses for $5 that I simply couldn’t pass up, and they really brighten up my kitchen on the table in a pretty vase.  I also recently got a hummingbird feeder and attached it to my front window.  So far I haven’t seen any hummingbirds, but maybe it’s not the season yet for them.  I’m clueless, but thought it would be nice to have some bird watching going on now that I’m home a lot.

The other new thing I’ve been doing is lighting candles and taking a nice, hot bath at night.  I’ve been locking the door, and my son calls from the other side saying, “Mommy, are you taking a candle bath?”  It’s so cute.  After I get out and dressed he wants to blow them out.  There’s something relaxing about candles.  I’m all about relaxation lately, too. :)

After I pick up my son from preschool I’m going to take him to see the movie Princess and the Frog.  He’s so excited.  When his eyes opened this morning those were his first words, asking if we were still going to see the Princess and the Frog.  I’m really enjoying having more time to spend with my kids.

Next week my daughter’s orchestra is visiting some elementary schools to recruit new students for middle school orchestra.  I volunteered to transport the instruments in my van and go with the kids to lunch afterwards.  I’ve always wanted to be able to participate in this way, but never was able to because of work.

I saw my psychiatrist today.  She’s giving me a prescription for trazodone to help me sleep at night.  I told her I’ve been waking up at 2:50 a.m. every morning and she said that the adrenal glands kick in mid morning, plus I have increased levels of cortisol from stress that is causing me to wake up.  She said I should take my prozac in the morning instead of at night.  I’ll take the 2.5 mg of Abilify with the trazodone at bedtime.

My 12 year old daughter is going to talk with her next week for psychotherapy.  She has lots of anxiety and I think it will be really good for her to have someone to talk to about things.  Besides, we’re all about trying something new lately.

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Categories: Energy, Fibromyalgia, Kids.

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How to Get the Family to Understand FMS

December 23, 2009

How do your families support you when you have Fibromyalgia?  Do they understand that you are in pain, having a worse-than-usual day even though you look fine, are fatigued even though you just took a nap, and are depressed even though life looks promising?  I’m having a little trouble getting my family to make these connections.  The biggest problem for me is that I’m afraid they think I’m being lazy when in fact I’d really love to have the energy to join them for a trip to the mall or a movie.  I get the feeling that they think Mom doesn’t want to do fun family things because she’d rather stay home and take a nap or read a book.  They don’t get it that I do those things because that’s all I have the energy for some days.

And how do you manage the weight gain from medications?  I’m hopeful that my nutrition counseling will help me lose the 15 pounds I’ve packed on in 3 months, but I know that for my own well-being I NEED to take this medication in order to continue working full-time.  And how is it that I’m still expected to make dinner every night and do the family’s laundry and keep the house clean, when I work a full 40 hours a week, too?

The invisible part of this illness is what makes it difficult for my family to understand that it’s REAL.  I’m not getting a lot of understanding and compassion, and I’m trying to educate them as well as get involved in as many things as I can to make myself feel better—yoga, aquacise, eating right, walking, meditating, medicating, chiropractic, having good sleep hygiene, using theracane to release trigger points—I’m doing all those things and more.  How can they think that this isn’t real?

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Categories: Children, Energy, Fibromyalgia, Finding Balance, Kids, Nutrition, Support.

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Fibromyalgia with Kids

December 17, 2009

Having Fibromyalgia and having kids can be rough.  And I have it on both sides of the spectrum, with two daughters (15 and 12) and a son who is 5.  The hardest part is keeping the house clean!  I can straighten everything up, vacuum, mop the kitchen, make beds, do laundry, etc., and once the kids set foot in the door destruction begins.  First thing the girls do when they get off the bus from school is make popcorn, which they then drag upstairs to the office—my office, where I’m still usually trying to work—and get on the spare computer behind me.  Of course, there are water bottles involved, too, and I’m left with the mess.  Yes, there’s a trash can, but somehow kernels of unpopped and popped corn litter my floor and bottles of water are left half drunk.

Their bedrooms are horrendous.  Why do I put up with this, you ask?  Well, I have a theory.  It takes a lot of energy to tell someone to pick up after themselves repeatedly.  It takes even more energy to stand over them while they clean up their messes, making sure they do it properly.  So, I decided to try something new.  It’s called allowance.  Instead of giving them money whenever they want or need it, they can now earn a weekly allowance.  BUT it is not a set amount, depending on how well they hold up their end of the bargain.  The deal is that they have to keep their rooms relatively tidy—by making their beds everyday and washing their own laundry (and putting it away) each week, in addition to being mindful when they are asked to do anything else, such as clean up supper, sweep the kitchen floor, empty the dishwasher, or vacuum the kernels off my office carpet.

There is a cap, and I base that on their ages.  The oldest gets up to $15 a week, the twelve year old gets $12.50 (she’s actually twelve and a half, she argued, and won), minus whatever I deem they didn’t earn.  They started out doing pretty well, but have slacked off a bit, which will be evident in the amount of money they get tomorrow for allowance.  I’m hoping they will “get it”, and that a week’s turnaround time isn’t too long for them to make the connection and care enough on Day 1 of 7 to make their beds.  I’ll keep you posted.

We got a new shelving unit to put right inside the front door where they can store their bookbags and shoes instead of all over the entryway.  This has worked wonders!  But we’ve only had it for a week, so again, I’ll have to keep you posted.  It sure is easier to say, “Put your shoes on the shelf!” than it is to tell them to put them in their rooms upstairs, which is not likely to happen in my lifetime.

Now, the five year old is a different story.  Yes, he makes messes.  He has tons of toys that overfill the toy box and spill out all over the music room floor.  There’s another toy box with the same fate in his bedroom, but he is afraid of monsters in his room (thanks to my girls) so he doesn’t play in there as much.  The other thing he does is pull all the pillows off my sofa to make a hiding place.  He gets the pillows from every chair and couch we have, and piles them up in the family room.  I haven’t figured out how to get him to put them back yet.  I sound like a terribly bad mother letting my children walk all over me, and I don’t dispute it.  It’s just easier to wait until he’s gone to daycare for the day and put them all back in their correct places than it is to oversee the job getting done right by him.  At least I can look at a clean(ish) house while I’m working from home until the kids return to destroy it again.

While we’re on children, they all like to hug.  Hard.  I’m trying to teach them to give me soft hugs, but it’s really difficult for them.  Especially my son.  He will come running toward me like a flying torpedo and smack into me for a hug.  Can you say OUCH??

Yes, children have a hard time understanding that Mom has an invisible illness.  Five year olds want to see the booboo and teenagers don’t believe 95% of what you tell them anyway.  Anyone else have Fibromyalgia with some pointers on handling children?  This is just the tip of the iceberg.  We haven’t touched on the weekly nagging session over letting even more children sleep over at my house.  I’ll leave that for another post!

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