When You Wish Life Were Just a Dream

June 19, 2010

It has been a long time since I last posted on this blog, but there’s a really good reason for that.  I started back to work and my husband and I separated.  Yeah, life has been really rough the last couple of months.  My husband moved out at the end of April and now has a townhouse in a neighboring city not too far from me.  Then on May 19 I started back at work!  Work has been nice.  I didn’t think I’d be happy going back, but I really do enjoy working.  It as made me realize that the job wasn’t sucking the life out of me, my depression was.  Now that my meds are under control the job is bearable and usually kind of fun and interesting.

My daughter was in the hospital again in May when her meds caused her to start wanting to hurt other people, and now she’s doing very well on her combination of medicines.  She made it through the end of ninth grade with 2 Bs, 2 Cs, and one F (in Phys Ed).  We’re going to contest that grade because she did online work that was supposed to bring it up, but apparently didn’t.

Now that school is out and my husband has a large enough place of his own, the kids are spending alternating weeks with us, beginning on Sunday nights after dinner.  This has been his first full week having them and it feels like an eternity.  I miss them so much!  They spend the days at my parents’ house, so I did go for lunch over there one day when I was working from home, and it was a little slice of heaven.  They are great kids.  Maybe this will help us truly appreciate each of them a little more.

I’m so looking forward to Sunday evening when they come back into my life, littering the house with toys and guitars, and filling it with friends, laughter, and music…oh, and those words, “What is there to eat?” 

The interesting part in all of this is that I don’t miss my husband that much, not yet anyway.  I miss having him mow the lawn and cook out on the grill, but I’ve learned to do the first on my own and will soon learn the grill as well.  But I don’t miss the arguing, the giving in all the time, and the little frustrations that peppered my life with him.  I’m enjoying rearranging the furniture, painting my office, and doing little things to make it feel more like my home.  It always seemed weird not to feel at home in my own home, you know?  And I’ve grown very close to my cat this week while the kids have been gone.  She’s a good companion, and I think she likes me, too. :)

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Fibromyalgia, Finding Balance, Kids, Work.

Tags: ,

Home Schooling

April 13, 2010

My older daughter has been in the adolescent behavioral health program at a hospital for the last week after taking a bunch of pills some boy on the bus gave her.  She’s a 9th grader.  We’ve since learned that part of the reason she’s been getting D’s and F’s in her classes the past quarter is because she’s been skipping classes.  She said since she got her hair cut short people are calling her a dyke.  How can kids be so cruel?  She also mentioned that her parents may be getting a divorce.  Did she think this would help that situation?  People have told me that kids somehow unconsciously do drastic things to become a problem, so parents will have to come together to deal with it instead of worrying about their marriage.  Interesting.

The psychiatrist at the hospital agreed that home schooling for the last remaining weeks of the school year would be preferable.  I’m supposed to return to work on Monday!  I emailed my manager in desperation, asking her to please consider letting me return part time.  She responded that she’d have to think about how that might work, and said she’d get back to me in a couple of days.  I see my psychiatrist today and need to let her know whether I want to pursue long term disability or not.  I also asked my manager to let me work strange hours if part time was not an option (7am-12pm and 5-8pm), but I’m not at all sure I’d be able to keep that up along with home schooling, especially with all the sleep I’ve been requiring lately.  Maybe if I’m just so busy sleep won’t enter my mind…we could hope.

I’m very worried about my daughter.  She’s taking a small dose of prozac for now, and will begin therapy once weekly.  In addition to keeping her home I will have to figure out ways to keep her happy without letting her roam the neighborhood (the boy who gave her pills lives in our neighborhood).  My husband is already pursuing the boy by going through the school principal who will then get their security officer to follow up on it.  My neighbors have a farm with horses that they said my kids are more than welcome to visit.  Once we know where it is, they said we can even go there on our own whenever we’d like.  She can groom the horses, feed them, ride them, etc.  She loves being outdoors, so I think this could be a life saver for us.

The school will send a tutor once a week with all of her assignments for the week.  Hopefully we will be able to get her through the end of the year and help her get her grades back up.  The school has been very helpful.  My son was sick yesterday, throwing up all day, it just makes me wonder how on earth I’ll be able to handle such situations if I’m also trying to work, but we are reliant on my health insurance.  Please pray that either the part time or the long term disability comes through for me!

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Children, Depression, Fibromyalgia, Finding Balance, Kids, Work.

Tags: ,

Can I do it?

March 24, 2010

Well, my disability was approved through April 13th, at which point my doctors will be contacted once again to see if they feel I’m ready to begin working again on April 19th.  I’m just not sure I want to go back!  I could see about going into long term disability (I think I’m eligible for 25 weeks at 65% pay), or I could just go back to work.  I emailed my manager and she said that if I go back on the 19th we’d discuss ways to make my job less stressful.  So that’s a definite plus.

There are things I miss about working, but I’m not passionate about my job.  I guess I need to spend some time really thinking it over and talking to my husband about it as well.  I’m pretty sure he will encourage me to go back, although the family in general runs better when I’m at home and able to focus on their needs most of the time.  Sometimes I feel l had more time to myself when I was working, and I miss that.

So, weighing the pros and cons of going back to work is my primary concern these days.  On April 12th we will also find out if my husband gets accepted into the Foreign Service or not.  Lots of changes could be afoot!

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Fibromyalgia, Finding Balance.

Tags: ,

Who is this disability for, anyway?

March 9, 2010

When I got the approval for short term disability from work I was at the lowest place in my life—barely able to function enough to care for myself.  I was given eight weeks to pull myself out of the black pit of despair and get myself ready to begin anew.  Eight blessed weeks of low to no stress.  However, my family didn’t see it that way.

In a sense—looking back—I was like a child, unable to even voice my opinions or stand up for myself.  I was weary and exhausted.  Before I knew it, I had been assigned making daily lunches for two of my children everyday and the job of taking my daughter to school (the bus had been fine before) and my son to half-day preschool and picking him up four hours later everyday…not to mention watching him the rest of the afternoons and overseeing any projects he had and weekly homework assignments.  These were things we had been paying a family member to do.  Making dinner every night was another job, and I found myself at the local supermarket nearly every single day of the week!  Yes, I have learned how to make several new dishes—some of which have even become favorites at my house and may need to become posts on “Things I Love” as soon as I have the energy to write them.  And my children have been sicker than I ever remember during these few weeks, so I spent many hours in the car on the way to and from (and at) doctors’ appointments.  Then there were orthodontist visits, a special laser treatment to expose and pull down two of my older daughter’s teeth, and visits to the psychiatrist for my younger daughter for her anxiety.

This week I am in charge of calling the insurance company to find out why none of my therapy was covered (therapist is not in network), and picking my 9th grader up from school three days this week so she can stay late to work on an art project she’s behind on and go to math tutoring for her algebra class she’s failing.  And that’s not all she’s failing!  What could have happened?  I’m wondering if my leave and the distress of thinking her parents might be getting a divorce has affected her grades this semester.  Last semester her lowest grade was a C.  Now she’s carrying F’s in four of her five courses!  And she hasn’t a care in the world.  We’ve taken her phone, ipod, computer access, free time, and set up a rigid study schedule for her.  I’m setting up conferences with her five teachers to discuss the issues she’s having and find out how we can get information on when tests are coming up so she doesn’t “forget” to study and fail them all.  I’ve been looking online—because one of her teachers sent an email back stating that she has trouble concentrating in class—and I’m wondering if she may have ADHD.  She certainly seems to have all the symptoms.  She has a follow up with the pediatrician she’s been seeing for years next week, so I’m going to bring it up and see what the doctor thinks.

I want to thank my sister who has stepped in to help me twice a week by picking up my son and watching him those afternoons.  Those two days are ones I know I’ll be able to breathe.

I am now in the eighth week of my disability and finally finding some relief from the drug Cymbalta, which helps both my Fibromyalgia and my depression.  I’m still on Abilify and Prozac, but taping off of those until eventually I will only be on Cymbalta.  Well, that’s the plan for now.  Now that I’m feeling more like my old self, I’m thinking that it wasn’t fair to be given all the duties either our children did just fine for themselves or that we had paid help to do.  I was on a paid leave, although the plan at first was that I might never return to the job that has caused such stress in my life.  Why was it like someone flipped a switch, and now that mom’s home, she can do…everything! 

It sounds like I’m complaining, but I have a point to make here.  And it’s not that I don’t love my children and enjoy caring for them.  I actually do, especially this week now that I’m feeling better.  But my advice to anyone who needs time to turn their lives around and who needs to start with themselves, is to keep everything else constant.  Don’t start making drastic changes to make the lives of everyone else in the family easier until you start feeling better.  Take the time you need to sleep, if that’s what you feel you need.  To meditate, sew, shop, drive, walk—whatever makes you feel better about who you are.  Then, when you can see the light at the end of the tunnel and you are pulling your feet from the black pit you’ve been sitting in, slowly implement changes that will be beneficial to everyone else.  You are worth it, and they can’t be happy if you aren’t.

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Children, Depression, Energy, Fibromyalgia, Finding Balance, Support.

Tags: , ,

Acceptance of Doing Nothing

February 14, 2010

The other day I was sharing with a friend of mine some new thing I’d heard about that I thought might bring me some peace of mind.  He said that he thought I should stop listening to all the ideas people presented to me and stop taking everyone up on trying them out.  He said, “Just stop, stop, stop.  STOP!”

Well, not taking his advice to stop listening to advice, I took him up on his advice!  It has been liberating to let people tell me what they think I should do and know that I will probably not do it, because I don’t have to if it’s not what I feel is right for me.  Somehow, I always feel I must be striving to be productive, to make myself a better person, to contribute to society in special ways and be a good example.

His other advice was this: when there’s nothing to do, just do nothing.  Sit and watch a sunset.  Just be with yourself and be happy with that alone.  I’m usually knitting if I’m just sitting alone with nothing else to do, because of my deep seated belief that I must always be productive.  Lately I’ve had a hard time being happy, so if there’s nothing to do I will usually find myself crawling into bed to take a nap.  I’m always tired, you see.

But the other day I turned on some of my favorite classical piano music and sat and drank a whole cup of tea without doing anything else.  It wasn’t a super long time or anything, but it felt good to just do nothing (although technically I guess you could say I was listening to music and drinking tea!).  Well, I’m getting closer to the idea.  It will take some time before I’m really able to just sit and be with myself, happily.

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Depression, Fibromyalgia, Finding Balance.

Tags: ,

Taking a Break from Work

January 9, 2010

Well, the tires came to a screeching halt when my family life hit some major potholes.  My depression and fibro flareups created enough tension in the home that something had to happen.  I decided to take a personal leave of absence from work for several weeks. 

My leave begins officially on Monday.  For now we are saying I’ll be out for 30 days and we can update that if needed.  Last Friday I was able to stay at home and be a mom. 

My daughter missed her bus: no problem…I took her to school!  I cleaned my refrigerator and pantry in the kitchen and worked on my knitting (I’m making a scarf…it’s my third one but I’m still a novice at knitting at this point).  I visited my parents during the day, and after school I spent time with each of my children, made spaghetti, a nice salad, and garlic bread for dinner, and felt like the weight of the world had been lifted off my shoulders. 

I had no idea that the stress of my job was causing me to close myself off from my husband and children, but it was.  I was able to be patient with them almost immediately after learning I didn’t have to worry about my job.  I didn’t have to hold my energy in reserve so that I’d be able to perform at work the next day for 8 hours.  Normally I am sleeping when I’m not working, or I’m awake but mentally and emotionally shut down to preserve my sanity.  I think this is going to be a much-needed rest for me.

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Children, Depression, Energy, Fibromyalgia, Finding Balance.

Tags: ,

How to Get the Family to Understand FMS

December 23, 2009

How do your families support you when you have Fibromyalgia?  Do they understand that you are in pain, having a worse-than-usual day even though you look fine, are fatigued even though you just took a nap, and are depressed even though life looks promising?  I’m having a little trouble getting my family to make these connections.  The biggest problem for me is that I’m afraid they think I’m being lazy when in fact I’d really love to have the energy to join them for a trip to the mall or a movie.  I get the feeling that they think Mom doesn’t want to do fun family things because she’d rather stay home and take a nap or read a book.  They don’t get it that I do those things because that’s all I have the energy for some days.

And how do you manage the weight gain from medications?  I’m hopeful that my nutrition counseling will help me lose the 15 pounds I’ve packed on in 3 months, but I know that for my own well-being I NEED to take this medication in order to continue working full-time.  And how is it that I’m still expected to make dinner every night and do the family’s laundry and keep the house clean, when I work a full 40 hours a week, too?

The invisible part of this illness is what makes it difficult for my family to understand that it’s REAL.  I’m not getting a lot of understanding and compassion, and I’m trying to educate them as well as get involved in as many things as I can to make myself feel better—yoga, aquacise, eating right, walking, meditating, medicating, chiropractic, having good sleep hygiene, using theracane to release trigger points—I’m doing all those things and more.  How can they think that this isn’t real?

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Children, Energy, Fibromyalgia, Finding Balance, Kids, Nutrition, Support.

Tags: , , , , ,

Fibromyalgia with Kids

December 17, 2009

Having Fibromyalgia and having kids can be rough.  And I have it on both sides of the spectrum, with two daughters (15 and 12) and a son who is 5.  The hardest part is keeping the house clean!  I can straighten everything up, vacuum, mop the kitchen, make beds, do laundry, etc., and once the kids set foot in the door destruction begins.  First thing the girls do when they get off the bus from school is make popcorn, which they then drag upstairs to the office—my office, where I’m still usually trying to work—and get on the spare computer behind me.  Of course, there are water bottles involved, too, and I’m left with the mess.  Yes, there’s a trash can, but somehow kernels of unpopped and popped corn litter my floor and bottles of water are left half drunk.

Their bedrooms are horrendous.  Why do I put up with this, you ask?  Well, I have a theory.  It takes a lot of energy to tell someone to pick up after themselves repeatedly.  It takes even more energy to stand over them while they clean up their messes, making sure they do it properly.  So, I decided to try something new.  It’s called allowance.  Instead of giving them money whenever they want or need it, they can now earn a weekly allowance.  BUT it is not a set amount, depending on how well they hold up their end of the bargain.  The deal is that they have to keep their rooms relatively tidy—by making their beds everyday and washing their own laundry (and putting it away) each week, in addition to being mindful when they are asked to do anything else, such as clean up supper, sweep the kitchen floor, empty the dishwasher, or vacuum the kernels off my office carpet.

There is a cap, and I base that on their ages.  The oldest gets up to $15 a week, the twelve year old gets $12.50 (she’s actually twelve and a half, she argued, and won), minus whatever I deem they didn’t earn.  They started out doing pretty well, but have slacked off a bit, which will be evident in the amount of money they get tomorrow for allowance.  I’m hoping they will “get it”, and that a week’s turnaround time isn’t too long for them to make the connection and care enough on Day 1 of 7 to make their beds.  I’ll keep you posted.

We got a new shelving unit to put right inside the front door where they can store their bookbags and shoes instead of all over the entryway.  This has worked wonders!  But we’ve only had it for a week, so again, I’ll have to keep you posted.  It sure is easier to say, “Put your shoes on the shelf!” than it is to tell them to put them in their rooms upstairs, which is not likely to happen in my lifetime.

Now, the five year old is a different story.  Yes, he makes messes.  He has tons of toys that overfill the toy box and spill out all over the music room floor.  There’s another toy box with the same fate in his bedroom, but he is afraid of monsters in his room (thanks to my girls) so he doesn’t play in there as much.  The other thing he does is pull all the pillows off my sofa to make a hiding place.  He gets the pillows from every chair and couch we have, and piles them up in the family room.  I haven’t figured out how to get him to put them back yet.  I sound like a terribly bad mother letting my children walk all over me, and I don’t dispute it.  It’s just easier to wait until he’s gone to daycare for the day and put them all back in their correct places than it is to oversee the job getting done right by him.  At least I can look at a clean(ish) house while I’m working from home until the kids return to destroy it again.

While we’re on children, they all like to hug.  Hard.  I’m trying to teach them to give me soft hugs, but it’s really difficult for them.  Especially my son.  He will come running toward me like a flying torpedo and smack into me for a hug.  Can you say OUCH??

Yes, children have a hard time understanding that Mom has an invisible illness.  Five year olds want to see the booboo and teenagers don’t believe 95% of what you tell them anyway.  Anyone else have Fibromyalgia with some pointers on handling children?  This is just the tip of the iceberg.  We haven’t touched on the weekly nagging session over letting even more children sleep over at my house.  I’ll leave that for another post!

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Children, Energy, Fibromyalgia, Finding Balance, Kids, Support.

Tags: , , , , , ,

Thinking Twice

December 11, 2009

Today my husband and I were both working at our offices. His is across the street from mine, so we are fairly close. He sent an email to see if I wanted to go to an Indian buffet for lunch with a couple of his Indian coworkers. Originally I had planned to eat at work and even packed a lunch. After arriving at work, I had decided to spend my lunch hour driving back to my home office since the boss is off today and I have a later than usual meeting this afternoon. My first reaction to my husband’s email was to write back saying that I couldn’t do it, but then I thought twice.

Why couldn’t I have lunch with him and meet some of his coworkers, and then drive home? I was going to be working later than usual anyway, so there wasn’t an issue with getting in my time for the day. The lunch I packed could be saved for tomorrow, couldn’t it? So I ran it by my team lead who said, “Do whatever you have to do…no problem with me”, and I sent my husband a reply that said, “Sure!”

I think he was surprised. Which is kind of sad, really. The fact that I normally shy away from doing things on the spur of the moment can’t make me a very fun loving person, although I blame my inflexibility on the fibromyalgia. But I’ve decided that instead of jumping to my first inclination to say no to things of this nature, I’m going to start thinking twice about them. I’m going to think about the real reasons I’m saying no to doing things, especially if it’s something that I’d probably end up enjoying and that would make my kids or my husband feel better about me.

So today I thought to myself:

Do I have a meeting at lunch time that I can’t miss? No.

Am I behind on my hours for the week and can’t take the time to go out to lunch? No.

Do I have tasks that need to be completed today that would require working through lunch? No.

Do I hate Indian food? No.

And then I thought to myself:

Would it make my husband happy if I joined him and his coworkers for lunch? Yes.

Would it be something I’d probably enjoy? Yes.

Could I make it back to my home office in time for my afternoon meetings? Yes.

Do I have the energy today to eat lunch with new people? Yes.

Well, at least I have on makeup and am dressed (since I’m working in the office instead of at home—on work-from-home days I often work in my pajamas until noon and don’t put on any makeup all day). So the hardest part was already done. All I had to do was drive across the street to meet my husband and jump in his car.

From now on, instead of automatically saying no to things, I’m going to think about it first. I’m going to run some questions through my mind and make a decision based on how I’m feeling that particular day and on what kind of energy I’m going to need to make it through the things I already know I have to accomplish. If there’s not a good reason for me to say no then I’m going to start saying yes. I think I’ve gotten too good at saying no. Maybe stopping for a few moments to take everything into account will help me enjoy more things in life, and make me more fun to be around, too.

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Depression, Energy, Fibromyalgia, Finding Balance.

Tags: , , , ,

Mind Racing, Body Paralyzed

December 10, 2009

I used to be a sort of even keel, calm person by nature.  I used to feel pretty much the same everyday.  Not including big life changes (but even then, sometimes), I managed stress well.  My moods didn’t fluctuate from one day to the next and I didn’t feel like I was riding a roller coaster in the dark.  Which is exactly how I feel now that I have Fibromyalgia.

So far this week I haven’t experienced much calm.  Period.  The closest I came to it was yesterday when I was working from home and I had some Wilson Phillips music playing softly.  But instead of calm, I felt extremely energized and rushed around doing all kinds of household duties while I had that energy.

Usually I’m in bed resting when my husband gets home from work and he has to rant a bit about “what’s for supper” and “where’s Mom” before I drag myself up.  Yesterday I started supper: putting on the rice, cutting vegetables for stir fry and defrosting the chicken so it was almost ready by the time he got home.  I could tell he was surprised. :)

Today, my brain is racing but my body feels lethargic.  I truly would love to crawl back in bed and sleep until I wake up naturally, as in, without an alarm.  My back was sore when I got up today, and it was a real struggle to wake up when the alarm went off.

Yesterday my Dr. Frank’s Joint and Muscle relief spray came in the mail.  I squirted four times under my tongue last night and again this morning.  Also got a new pill container to separate my pills for each day of the week.  That’s only to make it easier on myself—instead of opening and closing three different bottles of pills every night I can pop open one lid and dump them all out. My twelve year old daughter was watching me sort out pills for my new container last night and she said, “Wow, it’s like you’re really sick or something.”  Yeah.

I’m hopeful the small adjustments I’ve made in my medications will be effective, and that the nutritional changes I’m about to make will help, too.

But what I’m frustrated with is this roller coaster from one day to the next.  Not only does it make it impossible to set plans, it makes me feel like I’m walking on egg shells.  Normally you’d feel that way toward someone else whose moods you can’t predict, walking lightly around them not to set off that invisible switch…but when that person is yourself it’s very unnerving!

I never in my wildest dreams would have thought this was possible.  That I couldn’t control my moods from one day to the next; that I couldn’t count on myself to be patient and pleasant with my coworkers or my precious children when they’re not doing anything out of the ordinary to cause me to explode inside; that I would have the desire to organize that basket full of junk (bills, letters, magazines…the catch-all basket that holds everything no one wants to deal with), but that I would sit and look at it without having the least bit of energy and drive to get up and actually organize it.

I’ve connected with several other FMS sufferers on Twitter and read some of their blogs since starting my own a couple weeks ago.  I know there are things we can learn from each other.  The way this illness manifests itself so uniquely in each person drives me batty though!  No wonder doctors find it difficult to get people on exactly the right meds to treat their symptoms.  And the day I see my doctor I might be experiencing more depression than fatigue, or more pain than depression (it’s like a tossed salad!), and so he treats me for how I’m feeling on that particular day which might not really be so helpful in the days to come.

I’m thinking about trying to start meditation.  Does anyone have any tips on how to go about starting?  My goal is to sit still for five minutes every morning and again for five minutes in the evening when I’m alone.  Just sit and try to clear my mind of all worries and anxiety, and try to forget about pain.  I’ll keep you posted on how this goes.

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Depression, Energy, Fibromyalgia, Finding Balance.

Tags: , , ,

Finding Your Balance

December 3, 2009

The hardest part about having fibromyalgia (for me, anyway) is figuring out how to manage my time effectively.  It’s impossible to say that I’ll clean up in the garage on Saturday when I have no idea how I’ll be feeling on Saturday.  I may have energy, and then again, I probably won’t.  It drives my kids nuts, because they are always wanting to fill in their evenings and weekends with fun things to do.  “What are we doing this weekend?” is my twelve year old daughter’s favorite question.  And I’m sure she thinks I’m the biggest stick in the mud because I always say that I hope we aren’t doing much of anything at all!  We live busy lives, and there is rarely a weekend when we aren’t participating in soccer or drumming lessons, hosting youth gatherings at our house on Friday evening, or attending devotions and children’s classes (and many times being the teachers for said classes) on Sundays.

For a young girl it’s hard to understand that Mom would prefer to get up slowly, maybe read a book, put some laundry in the washer, and drink her cup of tea without worrying about who has to be where when.  If I had the choice I’d probably become a real homebody with this illness.  But because we are always on the go, I have to take my breaks when I can get them.

This week looks like this, and is pretty typical for us.

Monday: Work at the office all day, volunteer 3 hours

Tuesday: Work from home, aquacise class in evening

Wednesday: Work from home, yoga class in evening

Thursday: Work from home, orchestra concert at middle school in evening

Friday: Work at the office all day, host youth gathering at our home in evening

Saturday: Aquacise at 8:15 am, host a study circle in our home (may include feeding them lunch), attend a birthday party for a friend’s son who is turning 16

Sunday: Attend devotions and teach children’s classes, yoga in afternoon

Not to mention all the other things that have to happen everyday, like homework, getting dinner, shopping if needed (usually someone needs to have something special for school the next day that they forgot to mention two weeks ago when they found out they needed it), etc.  My husband has decided this week that he will take it upon himself to put our son to bed every night.  I usually bathe him, but my husband will take him to his room and read to him and make up stories to tell him and stay with him until he is asleep.  My son can fall asleep faster than anyone I’ve ever known, so we’re lucky there.  Every night this week he has been in bed asleep by 8:00 pm!  It has given me a couple of hours every night to monitor how I’m feeling and handle household chores (or not) at my own pace.

I had a flare up, as I’ve heard other people call them, Tuesday after my first aquacise class.  My arms hurt so much I couldn’t fall asleep.  I felt pretty good pain-wise on Wednesday, but I was really fatigued and had to change my day to go into the office to Friday so I could stay home and take a nap during my lunch hour.  It’s like a juggling act trying to keep on top of all the things that need to get done in a day or in a week or in a month, making sure not to do too much on a good day or else you’ll pay for it the next few days with major pain and tiredness.

Whenever I get a chance I sneak in a nap.  I’m not sure if I do this only because I’m tired, or because I want to escape having to think about all there is to think about!  I’m still not sure my husband understands completely, because after all, I don’t look sick, right?  I know there are times when he’d like to go out and do something spontaneously, like go get a coffee together or catch a movie, but most of the time I have to turn him down because I know that I will pay for it the next day when I’m struggling to stay awake and work.

Does anyone else have any good tips on balancing the demands of life with the demands of fibromyalgia?  Please leave a comment or a link if you know of good resources!

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Fibromyalgia, Finding Balance.

Tags:

Get Adobe Flash playerPlugin by wpburn.com wordpress themes