A Little Loneliness

July 14, 2010

With three lively children I never thought I’d find myself in a position to be lonely. But yesterday I was very lonely. I stayed busy, but it was quiet in my world…too quiet for comfort, really. I’m not complaining; it’s nice to have some alone time, and if I knew that it wouldn’t happen on a regular basis it might be easier to handle. Although knowing that it will also gives me an opportunity to find things to do that I normally wouldn’t be able to with three kids around.

This week my husband and daughters are on a pilgrimage to the Baha’i temples and holy places in Haifa and Akka, Israel. My son is staying with my mother-in-law a state away until Friday. I went to Walmart on Sunday for my usual weekly shopping, realizing I need not buy things for kids who won’t be there for another week, and filling my cart instead with a few fresh fruits and several frozen dinners. What the heck—I also needed a new pair of sweat pants so I bought those, too. It was weird filling up the cart for myself and no one else. It was lonely, too.

Yesterday was Sunday. After my son was picked up for his week-long trip I took a nap. Then I went to Walmart and came back home to unload. It was only 3:00 and I had all my weekend duties finished (shopping, cleaning, laundry, the usual stuff), so I called my sister and we decided to go swimming together. That lasted about 45 minutes and I was back home by 4:30. I did a few crosswords (I can only do the easy ones) and tried to nap again to no avail. I changed a light bulb in the kitchen and decided to move the small TV and stand to the front living room, where I’d noticed cable outlets behind the couch. They must be data outlets because the TV didn’t work there. I ate my frozen dinner and talked to my cat, who decided to go outside to spend the whole night. I did some more crosswords, paid some bills online and checked my email and facebook. I walked a mile. Then I decided to pick out my clothes for work since I’ll be going in everyday now instead of working from home three days a week. I ended up ironing about five blouses so I’ll be set for the whole week.

My job is changing this week. My psychiatrist thinks I’m being beaten down in a toxic, insidious way by someone at work. I could hardly explain my unhappiness to my boss, but I tried, and she gave me a couple of different options to make a change in who I report to. I chose the one where I’ll be helping her out directly, kind of like an assistant. What kind of boss does that, anyway? My psychiatrist said that she must love me…I can’t really imagine why, but in my state of mind I hardly love myself anymore, which makes it even more difficult to comprehend. My friend at work said not to question it. Just take the good fortune and be grateful. So the only drawback was that my boss thought I’d do better if I came into the office everyday instead of working from home some days. If my mood improves and I get in a good routine with whatever she has me start doing, I’m sure she’ll let me go back to that one day.

The doctor said that I seemed far away. I told her that I feel like I’m in this body, walking around, going here to get this or that, coming home, but not really feeling like I’m present. It’s that fogginess thing people with Fibromyalgia can relate to well. She said she felt like I needed a jolt of electricity, but she wasn’t prescribing that…thank goodness! She put me on Wellbutrin in addition to Cymbalta and Abilify. She said that would hit all the neurotransmitters and hopefully pull me out of my funk. She also mentioned that going back on short term disability could be an option if it doesn’t. I hope it works because I need my income in order to keep my house. Anyway, I won’t be lonely too much longer. The kids come home on Friday and I’ll have them for a week before my husband has them again for his week. Loneliness will be banished then.

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Children, Depression, Fibro Fog, Fibromyalgia.

Update on my Life

May 14, 2010

Wow, lots has happened since last month when I wrote.  My husband moved out, my extension from work went through until tomorrow, and I find out today if it gets extended again to June or July, and my daughter is back in the hospital.  Unfortunately she didn’t respond well to the Prozac so she was prescribed Paxil, which led her to hear a voice telling her to hurt other people (especially her little 5 year old brother).  I took her to therapy on Wednesday this week and after a few minutes the therapist called me in to have my daughter tell me what she’d been hearing and seeing in her mind.  The therapist recommended we go to the hospital for an assessment, which we did, and which led to her being admitted again.

At visiting time last night the psychiatrist pulled us into her office and gave us the rundown on what medications Deanna might try next.  We’re going to go with a combination of Wellbutrin and Abilify and see if that helps.  Until the voice stops being so insistent, they want to keep her at the hospital.  Otherwise, she may get to go there as a partial or outpatient person, showing up everyday during the week from 8-4 and on weekends 9-1.  She’d really prefer that, but we will do what the hospital recommends in any case.

Today I have a meeting with Deanna and a counselor for some family therapy.  Her homebound situation with school has been working out remarkably well and her grades have improved.  It really has been a joy to spend so much time with her, as I haven’t let her out of my sight for very long periods of time.  We even published her many poems in a book of poetry through Lulu.com! 

So, I’m adjusting to life as a single mother, although my husband calls me several times a day and insists on showing up whenever he likes.  We have family therapy twice a month with the same therapist Deanna sees weekly, and next week it will just be my husband and me so we can discuss such boundary issues.

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Children, Depression, Fibromyalgia, Kids.

Tags:

Home Schooling

April 13, 2010

My older daughter has been in the adolescent behavioral health program at a hospital for the last week after taking a bunch of pills some boy on the bus gave her.  She’s a 9th grader.  We’ve since learned that part of the reason she’s been getting D’s and F’s in her classes the past quarter is because she’s been skipping classes.  She said since she got her hair cut short people are calling her a dyke.  How can kids be so cruel?  She also mentioned that her parents may be getting a divorce.  Did she think this would help that situation?  People have told me that kids somehow unconsciously do drastic things to become a problem, so parents will have to come together to deal with it instead of worrying about their marriage.  Interesting.

The psychiatrist at the hospital agreed that home schooling for the last remaining weeks of the school year would be preferable.  I’m supposed to return to work on Monday!  I emailed my manager in desperation, asking her to please consider letting me return part time.  She responded that she’d have to think about how that might work, and said she’d get back to me in a couple of days.  I see my psychiatrist today and need to let her know whether I want to pursue long term disability or not.  I also asked my manager to let me work strange hours if part time was not an option (7am-12pm and 5-8pm), but I’m not at all sure I’d be able to keep that up along with home schooling, especially with all the sleep I’ve been requiring lately.  Maybe if I’m just so busy sleep won’t enter my mind…we could hope.

I’m very worried about my daughter.  She’s taking a small dose of prozac for now, and will begin therapy once weekly.  In addition to keeping her home I will have to figure out ways to keep her happy without letting her roam the neighborhood (the boy who gave her pills lives in our neighborhood).  My husband is already pursuing the boy by going through the school principal who will then get their security officer to follow up on it.  My neighbors have a farm with horses that they said my kids are more than welcome to visit.  Once we know where it is, they said we can even go there on our own whenever we’d like.  She can groom the horses, feed them, ride them, etc.  She loves being outdoors, so I think this could be a life saver for us.

The school will send a tutor once a week with all of her assignments for the week.  Hopefully we will be able to get her through the end of the year and help her get her grades back up.  The school has been very helpful.  My son was sick yesterday, throwing up all day, it just makes me wonder how on earth I’ll be able to handle such situations if I’m also trying to work, but we are reliant on my health insurance.  Please pray that either the part time or the long term disability comes through for me!

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Children, Depression, Fibromyalgia, Finding Balance, Kids, Work.

Tags: ,

Who is this disability for, anyway?

March 9, 2010

When I got the approval for short term disability from work I was at the lowest place in my life—barely able to function enough to care for myself.  I was given eight weeks to pull myself out of the black pit of despair and get myself ready to begin anew.  Eight blessed weeks of low to no stress.  However, my family didn’t see it that way.

In a sense—looking back—I was like a child, unable to even voice my opinions or stand up for myself.  I was weary and exhausted.  Before I knew it, I had been assigned making daily lunches for two of my children everyday and the job of taking my daughter to school (the bus had been fine before) and my son to half-day preschool and picking him up four hours later everyday…not to mention watching him the rest of the afternoons and overseeing any projects he had and weekly homework assignments.  These were things we had been paying a family member to do.  Making dinner every night was another job, and I found myself at the local supermarket nearly every single day of the week!  Yes, I have learned how to make several new dishes—some of which have even become favorites at my house and may need to become posts on “Things I Love” as soon as I have the energy to write them.  And my children have been sicker than I ever remember during these few weeks, so I spent many hours in the car on the way to and from (and at) doctors’ appointments.  Then there were orthodontist visits, a special laser treatment to expose and pull down two of my older daughter’s teeth, and visits to the psychiatrist for my younger daughter for her anxiety.

This week I am in charge of calling the insurance company to find out why none of my therapy was covered (therapist is not in network), and picking my 9th grader up from school three days this week so she can stay late to work on an art project she’s behind on and go to math tutoring for her algebra class she’s failing.  And that’s not all she’s failing!  What could have happened?  I’m wondering if my leave and the distress of thinking her parents might be getting a divorce has affected her grades this semester.  Last semester her lowest grade was a C.  Now she’s carrying F’s in four of her five courses!  And she hasn’t a care in the world.  We’ve taken her phone, ipod, computer access, free time, and set up a rigid study schedule for her.  I’m setting up conferences with her five teachers to discuss the issues she’s having and find out how we can get information on when tests are coming up so she doesn’t “forget” to study and fail them all.  I’ve been looking online—because one of her teachers sent an email back stating that she has trouble concentrating in class—and I’m wondering if she may have ADHD.  She certainly seems to have all the symptoms.  She has a follow up with the pediatrician she’s been seeing for years next week, so I’m going to bring it up and see what the doctor thinks.

I want to thank my sister who has stepped in to help me twice a week by picking up my son and watching him those afternoons.  Those two days are ones I know I’ll be able to breathe.

I am now in the eighth week of my disability and finally finding some relief from the drug Cymbalta, which helps both my Fibromyalgia and my depression.  I’m still on Abilify and Prozac, but taping off of those until eventually I will only be on Cymbalta.  Well, that’s the plan for now.  Now that I’m feeling more like my old self, I’m thinking that it wasn’t fair to be given all the duties either our children did just fine for themselves or that we had paid help to do.  I was on a paid leave, although the plan at first was that I might never return to the job that has caused such stress in my life.  Why was it like someone flipped a switch, and now that mom’s home, she can do…everything! 

It sounds like I’m complaining, but I have a point to make here.  And it’s not that I don’t love my children and enjoy caring for them.  I actually do, especially this week now that I’m feeling better.  But my advice to anyone who needs time to turn their lives around and who needs to start with themselves, is to keep everything else constant.  Don’t start making drastic changes to make the lives of everyone else in the family easier until you start feeling better.  Take the time you need to sleep, if that’s what you feel you need.  To meditate, sew, shop, drive, walk—whatever makes you feel better about who you are.  Then, when you can see the light at the end of the tunnel and you are pulling your feet from the black pit you’ve been sitting in, slowly implement changes that will be beneficial to everyone else.  You are worth it, and they can’t be happy if you aren’t.

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Children, Depression, Energy, Fibromyalgia, Finding Balance, Support.

Tags: , ,

Taking a Break from Work

January 9, 2010

Well, the tires came to a screeching halt when my family life hit some major potholes.  My depression and fibro flareups created enough tension in the home that something had to happen.  I decided to take a personal leave of absence from work for several weeks. 

My leave begins officially on Monday.  For now we are saying I’ll be out for 30 days and we can update that if needed.  Last Friday I was able to stay at home and be a mom. 

My daughter missed her bus: no problem…I took her to school!  I cleaned my refrigerator and pantry in the kitchen and worked on my knitting (I’m making a scarf…it’s my third one but I’m still a novice at knitting at this point).  I visited my parents during the day, and after school I spent time with each of my children, made spaghetti, a nice salad, and garlic bread for dinner, and felt like the weight of the world had been lifted off my shoulders. 

I had no idea that the stress of my job was causing me to close myself off from my husband and children, but it was.  I was able to be patient with them almost immediately after learning I didn’t have to worry about my job.  I didn’t have to hold my energy in reserve so that I’d be able to perform at work the next day for 8 hours.  Normally I am sleeping when I’m not working, or I’m awake but mentally and emotionally shut down to preserve my sanity.  I think this is going to be a much-needed rest for me.

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Children, Depression, Energy, Fibromyalgia, Finding Balance.

Tags: ,

How to Get the Family to Understand FMS

December 23, 2009

How do your families support you when you have Fibromyalgia?  Do they understand that you are in pain, having a worse-than-usual day even though you look fine, are fatigued even though you just took a nap, and are depressed even though life looks promising?  I’m having a little trouble getting my family to make these connections.  The biggest problem for me is that I’m afraid they think I’m being lazy when in fact I’d really love to have the energy to join them for a trip to the mall or a movie.  I get the feeling that they think Mom doesn’t want to do fun family things because she’d rather stay home and take a nap or read a book.  They don’t get it that I do those things because that’s all I have the energy for some days.

And how do you manage the weight gain from medications?  I’m hopeful that my nutrition counseling will help me lose the 15 pounds I’ve packed on in 3 months, but I know that for my own well-being I NEED to take this medication in order to continue working full-time.  And how is it that I’m still expected to make dinner every night and do the family’s laundry and keep the house clean, when I work a full 40 hours a week, too?

The invisible part of this illness is what makes it difficult for my family to understand that it’s REAL.  I’m not getting a lot of understanding and compassion, and I’m trying to educate them as well as get involved in as many things as I can to make myself feel better—yoga, aquacise, eating right, walking, meditating, medicating, chiropractic, having good sleep hygiene, using theracane to release trigger points—I’m doing all those things and more.  How can they think that this isn’t real?

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Children, Energy, Fibromyalgia, Finding Balance, Kids, Nutrition, Support.

Tags: , , , , ,

Fibromyalgia with Kids

December 17, 2009

Having Fibromyalgia and having kids can be rough.  And I have it on both sides of the spectrum, with two daughters (15 and 12) and a son who is 5.  The hardest part is keeping the house clean!  I can straighten everything up, vacuum, mop the kitchen, make beds, do laundry, etc., and once the kids set foot in the door destruction begins.  First thing the girls do when they get off the bus from school is make popcorn, which they then drag upstairs to the office—my office, where I’m still usually trying to work—and get on the spare computer behind me.  Of course, there are water bottles involved, too, and I’m left with the mess.  Yes, there’s a trash can, but somehow kernels of unpopped and popped corn litter my floor and bottles of water are left half drunk.

Their bedrooms are horrendous.  Why do I put up with this, you ask?  Well, I have a theory.  It takes a lot of energy to tell someone to pick up after themselves repeatedly.  It takes even more energy to stand over them while they clean up their messes, making sure they do it properly.  So, I decided to try something new.  It’s called allowance.  Instead of giving them money whenever they want or need it, they can now earn a weekly allowance.  BUT it is not a set amount, depending on how well they hold up their end of the bargain.  The deal is that they have to keep their rooms relatively tidy—by making their beds everyday and washing their own laundry (and putting it away) each week, in addition to being mindful when they are asked to do anything else, such as clean up supper, sweep the kitchen floor, empty the dishwasher, or vacuum the kernels off my office carpet.

There is a cap, and I base that on their ages.  The oldest gets up to $15 a week, the twelve year old gets $12.50 (she’s actually twelve and a half, she argued, and won), minus whatever I deem they didn’t earn.  They started out doing pretty well, but have slacked off a bit, which will be evident in the amount of money they get tomorrow for allowance.  I’m hoping they will “get it”, and that a week’s turnaround time isn’t too long for them to make the connection and care enough on Day 1 of 7 to make their beds.  I’ll keep you posted.

We got a new shelving unit to put right inside the front door where they can store their bookbags and shoes instead of all over the entryway.  This has worked wonders!  But we’ve only had it for a week, so again, I’ll have to keep you posted.  It sure is easier to say, “Put your shoes on the shelf!” than it is to tell them to put them in their rooms upstairs, which is not likely to happen in my lifetime.

Now, the five year old is a different story.  Yes, he makes messes.  He has tons of toys that overfill the toy box and spill out all over the music room floor.  There’s another toy box with the same fate in his bedroom, but he is afraid of monsters in his room (thanks to my girls) so he doesn’t play in there as much.  The other thing he does is pull all the pillows off my sofa to make a hiding place.  He gets the pillows from every chair and couch we have, and piles them up in the family room.  I haven’t figured out how to get him to put them back yet.  I sound like a terribly bad mother letting my children walk all over me, and I don’t dispute it.  It’s just easier to wait until he’s gone to daycare for the day and put them all back in their correct places than it is to oversee the job getting done right by him.  At least I can look at a clean(ish) house while I’m working from home until the kids return to destroy it again.

While we’re on children, they all like to hug.  Hard.  I’m trying to teach them to give me soft hugs, but it’s really difficult for them.  Especially my son.  He will come running toward me like a flying torpedo and smack into me for a hug.  Can you say OUCH??

Yes, children have a hard time understanding that Mom has an invisible illness.  Five year olds want to see the booboo and teenagers don’t believe 95% of what you tell them anyway.  Anyone else have Fibromyalgia with some pointers on handling children?  This is just the tip of the iceberg.  We haven’t touched on the weekly nagging session over letting even more children sleep over at my house.  I’ll leave that for another post!

Share and Enjoy:
  • Print
  • Digg
  • Sphinn
  • del.icio.us
  • Facebook
  • Google Bookmarks
  • Blogplay
  • email
  • MySpace
  • StumbleUpon
  • Technorati
  • Tumblr
  • Twitter

Categories: Children, Energy, Fibromyalgia, Finding Balance, Kids, Support.

Tags: , , , , , ,

Get Adobe Flash playerPlugin by wpburn.com wordpress themes