Bipolar Too?

December 31, 2009

I’ve enjoyed the past couple of weeks, visiting with family I haven’t seen in a long time and taking some much needed time away from work.  We had a big family picture with all my siblings and their families along with my parents and I’m looking forward to getting those.  We had a professional photographer come to take them at my mother-in-law’s house since she has a lot of space and a pretty fireplace to use as a background.

Today I found a new psychiatrist who is also a neurologist.  I’m beginning to think that maybe I’m bipolar.  It seems like I’ll have several bad months and then a couple good ones every  now and then, when I’m able to be very productive and feel more alive than ever.  The last big upswing I had was last summer and I attributed it to a change in medication when my doctor put me on a very small dose of zyprexa.  I had so much energy and felt like singing in the car again (I can measure my depression on a scale of how much I feel like singing to the radio!).  My general practitioner prescribed that after taking me off birth control and trying some other options that didn’t pull me out of my depression.  I was walking everyday, wrote a book and published it myself online (for ballet teachers), started a ballet blog, and was feeling really good about myself and my life.

It lasted a couple of months and I’ve been down in the dumps since about September.  I sleep an awful lot, and even when I’m not sleepy I will sleep just to escape life.  I suppose it’s similar to how some people veg out in front of the TV just to relax, only I want to escape even more completely than that.  I’m not suicidal or anything, but it’s making it difficult to get through a day’s work without stress and tears over things that shouldn’t cause me such stress and tears!

bipolar

My appointment is February 5th and I’m hopeful that seeing a specialist will get me the help I need and the right medications to get out of this rut.

I hope everyone has a Happy New Year, and that it’s full of happiness and free of pain.  Or a little bit freer of pain, at least.  :)

Categories: Depression, Energy, Fibromyalgia.

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Needlework

December 23, 2009

Doing needlepoint, and candlewicking is really my favorite because of the different stitches and textures it involves, is relaxing and fun for me.  Plus, they make nice gifts as you can frame them or turn them into small pillows or pillowcases.  I recently started doing this again, now that my son is old enough not to be overly interested in the threads I have to lay out.  You can do this when watching TV, too, as long as you have enough light!  I’ve tried cross-stitching but I don’t think it’s as fun because it’s the same stitch used throughout (I get bored easily!).

Categories: Fibromyalgia.

How to Get the Family to Understand FMS

December 23, 2009

How do your families support you when you have Fibromyalgia?  Do they understand that you are in pain, having a worse-than-usual day even though you look fine, are fatigued even though you just took a nap, and are depressed even though life looks promising?  I’m having a little trouble getting my family to make these connections.  The biggest problem for me is that I’m afraid they think I’m being lazy when in fact I’d really love to have the energy to join them for a trip to the mall or a movie.  I get the feeling that they think Mom doesn’t want to do fun family things because she’d rather stay home and take a nap or read a book.  They don’t get it that I do those things because that’s all I have the energy for some days.

And how do you manage the weight gain from medications?  I’m hopeful that my nutrition counseling will help me lose the 15 pounds I’ve packed on in 3 months, but I know that for my own well-being I NEED to take this medication in order to continue working full-time.  And how is it that I’m still expected to make dinner every night and do the family’s laundry and keep the house clean, when I work a full 40 hours a week, too?

The invisible part of this illness is what makes it difficult for my family to understand that it’s REAL.  I’m not getting a lot of understanding and compassion, and I’m trying to educate them as well as get involved in as many things as I can to make myself feel better—yoga, aquacise, eating right, walking, meditating, medicating, chiropractic, having good sleep hygiene, using theracane to release trigger points—I’m doing all those things and more.  How can they think that this isn’t real?

Categories: Children, Energy, Fibromyalgia, Finding Balance, Kids, Nutrition, Support.

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Nutrition

December 22, 2009

I saw my rheumatologist yesterday as well as my primary care physician.  The rheumatologist didn’t want to do anything with my meds for depression, saying he doesn’t profess to know anything about that.  He just said that I should increase my dosage of Neurontin (Gabapentin) from 200mg to 300mg everyday, and that I could call in a couple of weeks and he may even have me go up more.  I know some people take a whole lot more than that, but it’s not so much the pain that I’m having trouble with as it is the anxiety and depression.  He thought that increasing the dosage would probably help my “sleep architecture” so I wouldn’t be having as fractured sleep as I am (told him I can sleep 13 hours and still be tired), so we’ll see what happens.  I took 300mg last night and slept like a log.

My primary care doctor was going to take me off Zyprexa and put me on Pristiq, since I told him that my sister takes Pristiq and is doing very well on it and losing weight even.  But it turns out that you can’t take it and Prozac at the same time, so he just left my meds as they are now, saying I could increase the Zyprexa if needed, and that 2.5mg is really not a very big dose.  Right now I’m only taking 1/2 a 2.5mg tablet and that knocks me out and makes it hard for me to wake up the next day.  I’ll just keep things as they are and hopefully with the changes at work I won’t go out of my mind with worry.

I ordered a theracane from Amazon.com and really like it!  It’s great because you can reach trigger points without the aid of another person.  It can reach every trigger point in your body!  I highly recommend them.  I got one for my brother-in-law and he loves it.  The other thing I ordered today and am eagerly waiting to receive in the mail is a pain relief neck wrap from www.relaxpack.com.  The owner of Relax Pack suffers from Fibromyalgia and created these hot or cold packs out of all organic materials and herbs.  It sounds really nice.

On Thursday I meet with my nutritionist who is going to give me meal plans!  She had me buy a water distiller (the $99 one that has stainless steel inside) and a nice blender so I can make smoothies, too.  Apparently this commercial blender will chop up avocado seeds and other seeds that hold a lot of nutrients.  Now I’ll be able to really start getting a handle on my nutrition and stop craving things I don’t need!  Hopefully it will help me lose some of this added weight, too, and give me more energy.  She said that in time eating the right foods will allow me to go off of some of my medications.  That would be wonderful!  I’ll post some smoothie recipes later when I get them.  Here are some nutrition tips she gave me:

  • Water instead of Sodas, Kool Aid, etc.
  • Eat at least 4 cups of cooked vegetables – include dark greens
  • Eat 2-3 servings of fruit daily – don’t count juice
  • Fish – 3 times a week (especially salmon and small fish)
  • Good fats – olive, safflower, nuts & seeds, avocado
  • Shop around the periphery of the grocery store
  • Go natural – minimize salt, sugar, additives, preservatives
  • Eat a variety of foods
  • Nibble instead of gorge
  • Stay away from foods that don’t rot or sprout
  • Eat nutrient dense foods
  • Choose high fiber foods
  • Eat enough protein (100 grams if you weigh 150 lbs)
  • Stay away from hard to digest foods
  • Avoid grilling
  • Keep bowels healthy – at least one bowel movement a day

At my first meeting with her she did say I should drink 2 cups of lukewarm distilled water first thing in the morning, before eating any food.  This gently awakens the digestive system.  She said to use skim milk instead of 2%, to eat two halves of a walnut everyday, to get Ezekiel bread, to drink water 15 minutes before a meal or 30 minutes after (but don’t drink during a meal!), to use coconut oil for stir frying, and that I should eat dates with grapefruit instead of alone as a snack.  Lastly, she said to eat two egg whites and one egg yolk for breakfast and that boiled or poached are best.  I didn’t know the protein was in the egg white and not the yolk!  I’ve been trying to do these things until I get my real meal plans from her on Thursday.

I hope everyone enjoys their holidays and stays warm and pain free.  :)

Categories: Depression, Energy, Fibromyalgia, Nutrition.

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Fibromyalgia with Kids

December 17, 2009

Having Fibromyalgia and having kids can be rough.  And I have it on both sides of the spectrum, with two daughters (15 and 12) and a son who is 5.  The hardest part is keeping the house clean!  I can straighten everything up, vacuum, mop the kitchen, make beds, do laundry, etc., and once the kids set foot in the door destruction begins.  First thing the girls do when they get off the bus from school is make popcorn, which they then drag upstairs to the office—my office, where I’m still usually trying to work—and get on the spare computer behind me.  Of course, there are water bottles involved, too, and I’m left with the mess.  Yes, there’s a trash can, but somehow kernels of unpopped and popped corn litter my floor and bottles of water are left half drunk.

Their bedrooms are horrendous.  Why do I put up with this, you ask?  Well, I have a theory.  It takes a lot of energy to tell someone to pick up after themselves repeatedly.  It takes even more energy to stand over them while they clean up their messes, making sure they do it properly.  So, I decided to try something new.  It’s called allowance.  Instead of giving them money whenever they want or need it, they can now earn a weekly allowance.  BUT it is not a set amount, depending on how well they hold up their end of the bargain.  The deal is that they have to keep their rooms relatively tidy—by making their beds everyday and washing their own laundry (and putting it away) each week, in addition to being mindful when they are asked to do anything else, such as clean up supper, sweep the kitchen floor, empty the dishwasher, or vacuum the kernels off my office carpet.

There is a cap, and I base that on their ages.  The oldest gets up to $15 a week, the twelve year old gets $12.50 (she’s actually twelve and a half, she argued, and won), minus whatever I deem they didn’t earn.  They started out doing pretty well, but have slacked off a bit, which will be evident in the amount of money they get tomorrow for allowance.  I’m hoping they will “get it”, and that a week’s turnaround time isn’t too long for them to make the connection and care enough on Day 1 of 7 to make their beds.  I’ll keep you posted.

We got a new shelving unit to put right inside the front door where they can store their bookbags and shoes instead of all over the entryway.  This has worked wonders!  But we’ve only had it for a week, so again, I’ll have to keep you posted.  It sure is easier to say, “Put your shoes on the shelf!” than it is to tell them to put them in their rooms upstairs, which is not likely to happen in my lifetime.

Now, the five year old is a different story.  Yes, he makes messes.  He has tons of toys that overfill the toy box and spill out all over the music room floor.  There’s another toy box with the same fate in his bedroom, but he is afraid of monsters in his room (thanks to my girls) so he doesn’t play in there as much.  The other thing he does is pull all the pillows off my sofa to make a hiding place.  He gets the pillows from every chair and couch we have, and piles them up in the family room.  I haven’t figured out how to get him to put them back yet.  I sound like a terribly bad mother letting my children walk all over me, and I don’t dispute it.  It’s just easier to wait until he’s gone to daycare for the day and put them all back in their correct places than it is to oversee the job getting done right by him.  At least I can look at a clean(ish) house while I’m working from home until the kids return to destroy it again.

While we’re on children, they all like to hug.  Hard.  I’m trying to teach them to give me soft hugs, but it’s really difficult for them.  Especially my son.  He will come running toward me like a flying torpedo and smack into me for a hug.  Can you say OUCH??

Yes, children have a hard time understanding that Mom has an invisible illness.  Five year olds want to see the booboo and teenagers don’t believe 95% of what you tell them anyway.  Anyone else have Fibromyalgia with some pointers on handling children?  This is just the tip of the iceberg.  We haven’t touched on the weekly nagging session over letting even more children sleep over at my house.  I’ll leave that for another post!

Categories: Children, Energy, Fibromyalgia, Finding Balance, Kids, Support.

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Thinking Twice

December 11, 2009

Today my husband and I were both working at our offices. His is across the street from mine, so we are fairly close. He sent an email to see if I wanted to go to an Indian buffet for lunch with a couple of his Indian coworkers. Originally I had planned to eat at work and even packed a lunch. After arriving at work, I had decided to spend my lunch hour driving back to my home office since the boss is off today and I have a later than usual meeting this afternoon. My first reaction to my husband’s email was to write back saying that I couldn’t do it, but then I thought twice.

Why couldn’t I have lunch with him and meet some of his coworkers, and then drive home? I was going to be working later than usual anyway, so there wasn’t an issue with getting in my time for the day. The lunch I packed could be saved for tomorrow, couldn’t it? So I ran it by my team lead who said, “Do whatever you have to do…no problem with me”, and I sent my husband a reply that said, “Sure!”

I think he was surprised. Which is kind of sad, really. The fact that I normally shy away from doing things on the spur of the moment can’t make me a very fun loving person, although I blame my inflexibility on the fibromyalgia. But I’ve decided that instead of jumping to my first inclination to say no to things of this nature, I’m going to start thinking twice about them. I’m going to think about the real reasons I’m saying no to doing things, especially if it’s something that I’d probably end up enjoying and that would make my kids or my husband feel better about me.

So today I thought to myself:

Do I have a meeting at lunch time that I can’t miss? No.

Am I behind on my hours for the week and can’t take the time to go out to lunch? No.

Do I have tasks that need to be completed today that would require working through lunch? No.

Do I hate Indian food? No.

And then I thought to myself:

Would it make my husband happy if I joined him and his coworkers for lunch? Yes.

Would it be something I’d probably enjoy? Yes.

Could I make it back to my home office in time for my afternoon meetings? Yes.

Do I have the energy today to eat lunch with new people? Yes.

Well, at least I have on makeup and am dressed (since I’m working in the office instead of at home—on work-from-home days I often work in my pajamas until noon and don’t put on any makeup all day). So the hardest part was already done. All I had to do was drive across the street to meet my husband and jump in his car.

From now on, instead of automatically saying no to things, I’m going to think about it first. I’m going to run some questions through my mind and make a decision based on how I’m feeling that particular day and on what kind of energy I’m going to need to make it through the things I already know I have to accomplish. If there’s not a good reason for me to say no then I’m going to start saying yes. I think I’ve gotten too good at saying no. Maybe stopping for a few moments to take everything into account will help me enjoy more things in life, and make me more fun to be around, too.

Categories: Depression, Energy, Fibromyalgia, Finding Balance.

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Mind Racing, Body Paralyzed

December 10, 2009

I used to be a sort of even keel, calm person by nature.  I used to feel pretty much the same everyday.  Not including big life changes (but even then, sometimes), I managed stress well.  My moods didn’t fluctuate from one day to the next and I didn’t feel like I was riding a roller coaster in the dark.  Which is exactly how I feel now that I have Fibromyalgia.

So far this week I haven’t experienced much calm.  Period.  The closest I came to it was yesterday when I was working from home and I had some Wilson Phillips music playing softly.  But instead of calm, I felt extremely energized and rushed around doing all kinds of household duties while I had that energy.

Usually I’m in bed resting when my husband gets home from work and he has to rant a bit about “what’s for supper” and “where’s Mom” before I drag myself up.  Yesterday I started supper: putting on the rice, cutting vegetables for stir fry and defrosting the chicken so it was almost ready by the time he got home.  I could tell he was surprised. :)

Today, my brain is racing but my body feels lethargic.  I truly would love to crawl back in bed and sleep until I wake up naturally, as in, without an alarm.  My back was sore when I got up today, and it was a real struggle to wake up when the alarm went off.

Yesterday my Dr. Frank’s Joint and Muscle relief spray came in the mail.  I squirted four times under my tongue last night and again this morning.  Also got a new pill container to separate my pills for each day of the week.  That’s only to make it easier on myself—instead of opening and closing three different bottles of pills every night I can pop open one lid and dump them all out. My twelve year old daughter was watching me sort out pills for my new container last night and she said, “Wow, it’s like you’re really sick or something.”  Yeah.

I’m hopeful the small adjustments I’ve made in my medications will be effective, and that the nutritional changes I’m about to make will help, too.

But what I’m frustrated with is this roller coaster from one day to the next.  Not only does it make it impossible to set plans, it makes me feel like I’m walking on egg shells.  Normally you’d feel that way toward someone else whose moods you can’t predict, walking lightly around them not to set off that invisible switch…but when that person is yourself it’s very unnerving!

I never in my wildest dreams would have thought this was possible.  That I couldn’t control my moods from one day to the next; that I couldn’t count on myself to be patient and pleasant with my coworkers or my precious children when they’re not doing anything out of the ordinary to cause me to explode inside; that I would have the desire to organize that basket full of junk (bills, letters, magazines…the catch-all basket that holds everything no one wants to deal with), but that I would sit and look at it without having the least bit of energy and drive to get up and actually organize it.

I’ve connected with several other FMS sufferers on Twitter and read some of their blogs since starting my own a couple weeks ago.  I know there are things we can learn from each other.  The way this illness manifests itself so uniquely in each person drives me batty though!  No wonder doctors find it difficult to get people on exactly the right meds to treat their symptoms.  And the day I see my doctor I might be experiencing more depression than fatigue, or more pain than depression (it’s like a tossed salad!), and so he treats me for how I’m feeling on that particular day which might not really be so helpful in the days to come.

I’m thinking about trying to start meditation.  Does anyone have any tips on how to go about starting?  My goal is to sit still for five minutes every morning and again for five minutes in the evening when I’m alone.  Just sit and try to clear my mind of all worries and anxiety, and try to forget about pain.  I’ll keep you posted on how this goes.

Categories: Depression, Energy, Fibromyalgia, Finding Balance.

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Heading Downhill Fast

December 7, 2009

Well, the last few days have been really bad for me.  But I have a plan.  So, I have something constructive to look forward to, and I’m hoping that it will work for me.  Basically, I quit taking my Gabapentin because I’ve gained weight on it.  Being in pain keeps me from getting the exercise that I know I need, so it’s a vicious cycle.  When I first started taking Zyprexa it helped my depression so much, but that has been about 8 months ago and I only take 1/4 of a tablet because otherwise I can’t wake up in the morning.  I had a really hard weekend (not that I did anything to make it difficult, it just was), and ended up going to bed at 7:00 last night and waking up still feeling tired at 7:45 this morning.  My daughter was very upset that I didn’t make supper last night, but I just didn’t have the energy.

This morning my mother-in-law came to get my son, as usual, and made me a cup of tea before I sat down to work from home.  I told her I’d been asleep since 7:00 last night and that I’m having a bad episode of depression.  She thinks I need to get back on my medicine and take more Zyprexa, and said that she would help me with meals if I agree to see a friend of ours who is a nutritionist.  This friend does it for a living, so we made an appointment for next Monday to meet with her.  The first meeting is 90 minutes, and the second one is 60 minutes—where she helps you actually lay out a plan.  My mother-in-law called my husband and he thinks it will be great, and that the whole family can do it.  If they don’t like it, they can make something else to eat.  Hmmm, not sure how that will go over, but it’s worth a try.

I do think what we eat has an effect on our brains.  The main reason I’m interested though is for weight loss.  I just can’t feel good about myself when I’m overweight, plain and simple.  I know it sounds superficial and nutty, but it’s the truth.  In my youth I was a ballet dancer, and I’ve already given up so much of that life by taking a job working in a bank and giving up teaching, I can’t stand looking at my pudgy self in yoga class either.  Hopefully this will help me out.  And my husband agreed to go to aquacise with me tomorrow night!

Categories: Depression, Fibromyalgia, Support.

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Fibro Fog

December 5, 2009

Along with depression, fibro fog is the part of this illness that interferes with my life the most.  I found this article on brain fog and it spoke to me.  I could relate so well to many of the symptoms.

Brain Fog Symptoms

Symptoms of brain fog can range from mild to severe. They frequently vary from day to day, and not everyone has all of them. Symptoms include:

  • Word use & recall: Difficulty recalling known words, use of incorrect words, slow recall of names.
  • Short-term memory problems: Forgetfulness, inability to remember what’s read or heard.
  • Directional disorientation: Not recognizing familiar surroundings, easily becoming lost, having trouble recalling where things are.
  • Multitasking difficulties: Inability to pay attention to more than one thing, forgetfulness of original task when distracted.
  • Confusion & trouble concentrating Trouble processing information, easily distracted.
  • Math/number difficulties: Difficulty performing simple math, remembering sequences, transposing numbers, trouble remembering numbers.

My job requires a lot of time in conference calls on the telephone.  Often I’m not 100% sure what is going on because we’ve been reorganized and I’m “new”—how long will that excuse work?  I experience a lot of confusion and am easily distracted.  I take notes as best I can, although usually my notes only create more questions than answers.  Then comes the short-term memory problems…someone asks me about the meeting and I can’t even summarize what it was about.  Sometimes I can’t even recall what meeting they’re asking about, and I stand there looking stupid.  It takes going back to my desk, finding my notes, letting my mind relax a moment until it can sift through to the right meeting and (hopefully) come up with something semi-articulate to relate.

The thing that scared me more than anything was the directional disorientation.  I’d be driving home from work on a road that I knew fairly well, but it looks like any number of roads I’ve driven on in the different states where I’ve lived: just trees on either side of the two lane road, twists and turns and no real landmarks to speak of.  It would suddenly strike me that I wasn’t sure where I was.  I could be in Kentucky, or Indiana, or was I in North Carolina?  Yeah, scary stuff.  This would happen within the space of a couple of minutes and I’d remember exactly where I was, but during those few seconds it was like I’d gone out of my mind.

Fortunately I’m able to work my job and get things done on time.  I don’t know if anyone is aware of my confusion.  I don’t think they are.  But it scares me knowing that this has progressed over the last couple of years and that it could get worse.  What would I do if I couldn’t work?  My family depends on my income and mostly on the health insurance I get from my job.  I think we’d be okay financially with my husband’s job, but my girls will be wanting to go to college in the next four years and I know that’s not cheap.  My older daughter needs surgery for her jaw, and she wants to take a trip to Africa this coming summer (that I want her to take, too).  We’d have to cut back on some of these things if I weren’t able to continue working.

I just wish I had more passion for what I’m doing.  I know I’m lucky to have a good job in this economy so I shouldn’t be complaining and wanting more, but I hate feeling inadequate at what I do, and the confusion makes me feel inadequate 75% of the time.  How do other people with fibromyalgia manage this aspect of the illness in their professional lives?  Any insights would be gratefully considered.

Categories: Fibromyalgia.

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Support from Extended Family

December 4, 2009

I’m very fortunate to have family nearby.  We moved to North Carolina to be near my in-laws, and a few years after we arrived my father-in-law was diagnosed with a brain tumor.  He passed away at the age of 60 in 2005.  My parents moved out here shortly after we did, and so did my sister and her family.

I know some people have a lot of issues with their in-laws, but my mother-in-law is an angel (just like my father-in-law is in the next world!).  She picks up my son every morning, packs his lunch, and takes him to a half day preschool, then picks him up from there and takes him home with her for the rest of the day.  At the end of each day she brings him home to us!  He’s only been going to this new school for about a month, and he has homework that’s due every Thursday.  This week on Wednesday night I asked him about his homework and his eyes lit up.  He said, “Nanny did it with me!”  He took it out of his bag and sure enough, it was done.

Last night I was worrying about what I should fix for dinner, and I’d been working upstairs in my office (it was a work from home day) so I didn’t hear my mother-in-law when she came in with my son.  After work I went downstairs and saw a big container of chili and some blueberry muffins that she had made for us!  Dinner was already done.  And she does this kind of thing fairly often.

Last week I missed some work unexpectedly when my five year old son got croup and his pediatrician sent him to a hospital in an ambulance!  He was kept overnight but is doing great now.  Anyway, another day this week my daughter needed to get picked up from school a little early so she could get to an orthodontist appointment.  I didn’t think I should take off more work this week, so I asked my dad if he could pick her up and take her.  He used to substitute at the high school she goes to, so he knew exactly where to go to get her for early dismissal.  After he took her to the appointment, he brought her back home.

My niece and her dad both have Fibromyalgia, too, so they of course empathize.  My niece is doing really great and spends a lot of her free time with my girls.  She’s a wonderful role model for them (she’s 25 and they are 12 and 15).

A couple weekends ago I had made up my mind to really clean my kitchen.  I was having a hard time getting started, but my mom and dad showed up out of the blue just to say hi.  My mom said she’d love to clean my stovetop (ha!) and spent a good amount of time scrubbing until it shined.  She even lifted it up and cleaned under the drip pans.  So nice!

Anyway, I just wanted to express my appreciation for the support I have from my extended family.  I definitely couldn’t manage a full-time job, a house and family without all their help!  I hope others with fibromyalgia are able to get similar support from their friends and family.

Categories: Fibromyalgia, Support.

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Finding Your Balance

December 3, 2009

The hardest part about having fibromyalgia (for me, anyway) is figuring out how to manage my time effectively.  It’s impossible to say that I’ll clean up in the garage on Saturday when I have no idea how I’ll be feeling on Saturday.  I may have energy, and then again, I probably won’t.  It drives my kids nuts, because they are always wanting to fill in their evenings and weekends with fun things to do.  “What are we doing this weekend?” is my twelve year old daughter’s favorite question.  And I’m sure she thinks I’m the biggest stick in the mud because I always say that I hope we aren’t doing much of anything at all!  We live busy lives, and there is rarely a weekend when we aren’t participating in soccer or drumming lessons, hosting youth gatherings at our house on Friday evening, or attending devotions and children’s classes (and many times being the teachers for said classes) on Sundays.

For a young girl it’s hard to understand that Mom would prefer to get up slowly, maybe read a book, put some laundry in the washer, and drink her cup of tea without worrying about who has to be where when.  If I had the choice I’d probably become a real homebody with this illness.  But because we are always on the go, I have to take my breaks when I can get them.

This week looks like this, and is pretty typical for us.

Monday: Work at the office all day, volunteer 3 hours

Tuesday: Work from home, aquacise class in evening

Wednesday: Work from home, yoga class in evening

Thursday: Work from home, orchestra concert at middle school in evening

Friday: Work at the office all day, host youth gathering at our home in evening

Saturday: Aquacise at 8:15 am, host a study circle in our home (may include feeding them lunch), attend a birthday party for a friend’s son who is turning 16

Sunday: Attend devotions and teach children’s classes, yoga in afternoon

Not to mention all the other things that have to happen everyday, like homework, getting dinner, shopping if needed (usually someone needs to have something special for school the next day that they forgot to mention two weeks ago when they found out they needed it), etc.  My husband has decided this week that he will take it upon himself to put our son to bed every night.  I usually bathe him, but my husband will take him to his room and read to him and make up stories to tell him and stay with him until he is asleep.  My son can fall asleep faster than anyone I’ve ever known, so we’re lucky there.  Every night this week he has been in bed asleep by 8:00 pm!  It has given me a couple of hours every night to monitor how I’m feeling and handle household chores (or not) at my own pace.

I had a flare up, as I’ve heard other people call them, Tuesday after my first aquacise class.  My arms hurt so much I couldn’t fall asleep.  I felt pretty good pain-wise on Wednesday, but I was really fatigued and had to change my day to go into the office to Friday so I could stay home and take a nap during my lunch hour.  It’s like a juggling act trying to keep on top of all the things that need to get done in a day or in a week or in a month, making sure not to do too much on a good day or else you’ll pay for it the next few days with major pain and tiredness.

Whenever I get a chance I sneak in a nap.  I’m not sure if I do this only because I’m tired, or because I want to escape having to think about all there is to think about!  I’m still not sure my husband understands completely, because after all, I don’t look sick, right?  I know there are times when he’d like to go out and do something spontaneously, like go get a coffee together or catch a movie, but most of the time I have to turn him down because I know that I will pay for it the next day when I’m struggling to stay awake and work.

Does anyone else have any good tips on balancing the demands of life with the demands of fibromyalgia?  Please leave a comment or a link if you know of good resources!

Categories: Fibromyalgia, Finding Balance.

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Aquacise

December 2, 2009

Last night I decided to try out an aquacise class.  We have a real nice facility in the next town over that my family belongs to, and it includes a gym and swimming pools.  I also take yoga there, which I’ll write about another time.  I have read that exercising in the water is good for people with fibromyalgia, and since classes are included in my monthly fee at the gym I made up my mind to go.

At first I was afraid I was the only one there, as the four or five other participants showed up a little late, a little later, and the last one a lot later.  It didn’t seem to matter; everyone was welcomed enthusiastically at whatever time they managed to arrive.  Most had swim shoes or swim sneakers as well as webbed gloves.  They had some gloves I was able to borrow, and the instructor suggested I try the class a few times before investing in the shoes.

One of the women was talking about having had botox in her neck for her fibromyalgia.  Has anyone heard of that before?  I piped right up and said that I, too, have fibromyalgia.  The instructor had invited me to come to a Thursday night class in the deep pool, but after she learned that I have fibro she suddenly uninvited me.  She said the deep pool is cold water and that it wouldn’t be good for me after all.

We did a lot of stuff and it was a harder workout than I anticipated, although I managed to keep up with everyone and not feel completely out of my league.  We seemed to work on the abdominal muscles almost the entire hour, and of course we did a lot of work with our arms.  We used the noodles in different ways—straddling them and keeping our legs out 90 degrees in front of us while doing breast stroke one way and reversing it coming back, wrapping it around our backs and sitting back in the water with knees bent as though sitting in a chair then opening and closing the legs for more abdominal workouts.  We bent the noodle into pretzels and then used them as resistance under the water to push up and down with our arms.

The end of class felt nice, stretching out a little bit to finish up.  My neck was a little sore and stiff from holding it up, but once my abs get stronger I think that will improve.  I went home feeling pretty good about myself.  There’s another class with a different instructor on Saturday morning at 8:15 and I think I’ll try it out.

At about 11:00 PM (class was from 6:00-7:00) my arms were in such pain I couldn’t sleep.  I tossed and turned.  At midnight I took a hot bath to try to relieve the stress, but maybe that isn’t a good thing to do…?  When I was younger I used to dance a lot, and I know that hot baths always soothed sore muscles for me then.  At 1:00 AM I finally took my Gabapentin which I had stopped taking because I was blaming it for causing me to gain weight.  At 2:00 AM I took an Aleve, too.  The last I checked the time before falling asleep was 2:30 AM, and when I woke up in the morning my arms felt much better.

I was supposed to go into the office to work today, but instead decided to make it one of my work from home days.  I can work from home three days a week, and it’s wonderful to have that flexibility.  Besides, it rained all day and I was so tired.  I napped during my lunch hour, and I definitely wouldn’t have been able to do that in the office!

Tonight I’m going to my usual Wednesday night yoga from 7:30-8:45.  It’s a great class at a good speed.  The instructor knows I have issues with my lower back and that I have fibro, so if she goes into something too advanced I feel fine curtailing my activities and sinking back into a nice child’s pose or cobbler’s pose to rest.  But yoga is another post.  Maybe Saturday I won’t use the gloves at aquacise…I’m thinking the resistance they created was more than my puny arms can handle right at first.  But I’m excited about the possibilities of water exercise, because the class is offered Monday, Tuesday, and Wednesday evenings from 6:00-7:00, as well as Saturday mornings.  I’ll try to go to yoga Wed. and Sunday and do aquacise two times a week, too.

Categories: Exercise, Fibromyalgia.

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The Diagnosis

December 1, 2009

When my niece was diagnosed with Fibromyalgia, I went online to look it up to see what it was all about.  I was shocked.  So many of the symptoms matched my own and I was surprised my doctor hadn’t realized it.  He’d been treating me for depression only, which was my main irritation, but because of confusion and inability to think clearly he ordered an MRI and EEG which returned nothing unusual.  He was going to send me to a neurologist when I read about Fibromyalgia.   The pain at the specific trigger points, memory impairment, depression, restless legs, chronic fatigue, anxiety, irritable bowel, morning stiffness, and headaches clued me in quickly.  My doctor recommended a rheumatologist and the rest is history.

I found a great web site called www.fibrohaven.com and wanted to do something similar.  I want to post about alternative therapies that I’ve tried, in the hopes that it may help someone else who suffers in the same way I do.

Categories: Fibromyalgia.

Tags: ,

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